RESOURCES

To promote the expansion Consumer Directed Personal Assistance Program, in all of its forms, I have assembled the following list.

Consumer Directed Services is not an affiliate of any of the programs or organizations listed. This list has been compiled to provide a convenient source of information about the Consumer Directed Personal Assistance Program and to suggest directions a Consumer or Program Organizer may wish to consider as they manage their Consumer Directed Program.

Should the reader wish to recommend or discuss an element contained in this list, or wish to consult with Consumer Directed Services to obtain our perspective on a CDPAP issue, please send an e-mail to elitcher@consumerdirectedservices.com

Thank you for your interest in Consumer Directed Services.
Edward Litcher


ORGANIZATIONS
ABLEDATA
Access to Independence and Mobility (AIM)
Advancing Independence: Modernizing Medicare and Medicaid (AIMMM)
Alpha One
The Alzheimer's Association
American Association Of People With Disabilities (AAPD)
American Disabled for Attendant Programs Today (ADAPT)
ARISE, Inc.
Arkansas Independent Choices Project
Cash & Counseling
The Center for An Accessible Society
Center for Disability Rights
Centers for Medicare & Medicaid Services (CMS)
Center for Personal Assistance Services(CPAS)
ChooseAbility
Coalition to Implement Olmstead in New York (CTIONY)
Colorado - Consumer Directed Attendant Support Services (CDASS)
Community Access Unlimited
Consumer Directed Choices, Inc.
Consumer Directed Personal Assistance Association of New York State
The Disabilities Network of New York City (DNNYC)
Office of Disability, Aging and Long-Term Care Policy (DALTCP) REPORTS
Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet
Disability Rights Education and Defense Fund Inc.
Disability World
Disabled in Action (DIA)
ElderWeb
Families USA
The Florida Department of Elder Affairs
Granite State Independent Living (GSIL) - New Hampshire PCA Service
Home and Community-Based Services - Community Living Exchange Collaborative Clearinghouse
Independence Care System (ICS)
Independent Living Research Utilization (ILRU)
Independent Living Resources of Greater Birmingham
Independent Living USA
Institute on Independent Living
Jawonio
Kaiser Family Foundation
Kenai Peninsula Independent Living Center
Long Island Center for Independent Living, Inc.- LICIL
Long Term Care Community Coalition - LTCCC
Maryland Department of Human Resources - Adult Care Services
Minnesota Department of Human Services
Missouri - Department of Health and Senior Services
National Association for Home Care and Hospice (NAHC)
The National Coalition to Amend the Medicare Homebound Restriction for Americans with Significant Illness (NCAHB)
National Center for the Dissemination of Disability Research (NCDDR)
National Clearinghouse on the Direct Care Workforce
National Council on the Aging (NCOA)
The National Council on Disability (NCD)
National Council on Independent Living (NCIL)
The National Institute on Disability and Rehabilitation Research (NIDRR)
National Organization on Disability
The National Rehabilitation Information Center (NARIC)
Neighborhood Legal Services, Inc.
New Jersey Department of Health and Senior Services
New Jersey Department of Human Services
New York State Department of Health Consumer Guide to Community-Based Long Term Care Services
New York State Independent Living Council, Inc.
North Carolina Department of Health and Human Services
Paraprofessional Healthcare Institute (PHI)
Paraquad
People Inc. - Consumer Directed Personal Assistance Program
Post-Polio Health International
Texas Department of Human Services
United Cerebral Palsy (UCP)
Vermont Department of Aging and Disabilities Division of Advocacy and Independent Living
World Association of Persons with Disabilities
World Institute on Disability(WID)

ARTICLES
Ratzka, Adolf - 1986 INDEPENDENT LIVING AND ATTENDANT CARE IN SWEDEN: A CONSUMER PERSPECTIVE
Walker, Pamela - 1986 A GENERIC ORIENTATION TO DOING ATTENDANT WORK
Ulicny, Gary R; Jones, Michael L. - 1988 Consumer Management of Attendant Services: Benefits and Obstacles
Willig Levy, Chava - 1988 A People's History of the Independent Living Movement
Schnur, Sandra; Holland, Ira E. - 1992 Concepts for Independence, Inc.: a unique approach to personal assistance
Disabled Peoples' International Independent Living Committee - 1992 Resource Kit for Independent Living - TOOLS FOR POWER
New York State Law - 1992 New York State Education Law Article 139: Nursing Section 6908 Exempt persons
New York State Law - 1995 Consumer Directed Personal Assistance New York State Social Services Law Title 11: Medical Assistance for Needy Persons Article 5: Consumer Directed Personal Assistance Program Section 365f
Doty, Pamela; Kasper, Judith; Litvak, Simi - 1996 Consumer-Directed Models of Personal Care: Lessons from Medicaid
The National Institute on Consumer-Directed Long-Term Services - 1996 Consumer-Directed Services for Older People
Center on Human Policy - 1996 DEVELOPING INCLUSIVE SELF-DIRECTED PERSONAL ASSISTANCE SERVICES: ONE AGENCY'S EXPERIENCES
Flanagan, Susan A.; Green, Pamela S. - 1997 Consumer-Directed Personal Assistance Services: Key Operational Issues for State CD-PAS Programs Using Intermediary Service Organizations
Wagner, Donna L.; Nadash, Pamela; Sabatino, Charles; The National Council on the Aging - 1997 Autonomy of Abandonment: Changing Perspectives on Delegation
Mayberry, Pamela; Scala, Marisa; Scripps Gerontology Center - Miami University - Ohio Long-Term Care Research Project - 1997 Consumer-Directed Home Services: Issues and Models
Doty, Pamela J. - 1998 The Cash and Counseling Demonstration: An Experiment in Consumer-Directed Personal Assistance Services
Nadash, Pamela - 1998 Independent Choices: Enhancing Consumer Direction for People with Disabilities
Katz, Ruth - 1998 The Home and Community-Based Services Work Group
Mahoney, K.J.; Rusinowitz, Simon; Desmond, S.M.; Shoop, D.M.; Squillace, M.R.;Fay, R.A. - 1998 Determining Consumers' Preferences for a Cash Option: New York Telephone Survey Findings
Litvak, Simi - 1998 Personal Assistance Service Policy: Where We Have Been and Where We Are Going
Wilner, MaryAnn; Wyatt, Ann - 1998 Independence Care System: Managed Care for People with Disabilities
Cavallo, Pamela ES - 1998 Obtaining Personal Assistance
Holland, Ira E.; Litcher, Edward - 1998 Concepts of Independence, Inc., Consumer Directed Personal Assistance Guide
Dautel, Pamela J.; Frieden, Lex; Independent Living Research Utilization (ILRU) - 1999 Consumer Choice and Control: Personal Attendant Services and Supports in America Report of the National Blue Ribbon Panel on Personal Assistance Services
Kosciulek, John F. - 1999 Implications of Consumer Direction for Disability Policy - Development and Rehabilitation Service Delivery (Abstract)
United States General Accounting Office - 1999 Adults with Severe Disabilities - Federal and State Approaches for Personal Care and Other Services
Doty, Pamela; Benjamin, A.E.; Matthias, Ruth E.; Franke, Todd M. - 1999 In-Home Supportive Services for the Elderly and Disabled: A Comparison of Client-Directed Professional Management Models of Service Delivery
Flanagan, Susan A - 2000 Using Intermediary Service Organizations (ISO's) to Facilitate Individuals Use of Participant-Driven Support Service Programs (PPT Format)
Tilly, Jane; Wiener, Joshua M.; Evans Cuellar, Alison - 2000 Consumer-Directed Home and Community Services Programs in Five Countries: Policy Issues for Older People and Government
Miyake Geron, Scott - 2000 The Quality of Consumer-Directed Long-Term Care
Smith, Gary; O'Keeffe, Janet; Carpenter, Letty; Doty, Pamela; Kennedy, Gavin; Burwell, Brian; Mollica, Robert; Williams, Loretta - 2000 Understanding Medicaid Home and Community Services: A Primer
Paraprofessional Healthcare Institute - 2000 Recruiting Quality Health Care Paraprofessionals
Moseley, Charles - 2001 Balancing Safety and Freedom in Consumer Directed Systems of Support: Strategies and Recommendations
Duval, Natalie M.; Moseley, Charles - 2001 Negotiated Risk Agreements in Long-Term Support Services
Polivka, Larry - 2001 Paying Family Members to Provide Care: Policy Considerations for States
Wiener, Joshua M. - 2001 Consumer-Directed Home and Community Services: Policy Issues
U.S. Department of Health and Human Services - 2001 INDEPENDENT CHOICES: A National Symposium on Consumer-Direction and Self-Determination for the Elderly and Persons with Disabilities
Benjamin, A.E.- 2001 Consumer-Directed Services At Home: A New Model For Persons With Disabilities
Glazier, Raymond E. - 2001 The "Re-Invention" of Personal Assistance Services
U.S. Department of Health and Human Services - 2001 New Freedom Initiative
Reinhard, Susan C. - 2001 Consumer Directed Care and Nurse Practice Acts
Polivka, Larry; Salmon, Jennifer R. - 2001 Consumer-Directed Care: An Ethical, Empirical, and Practical Guide for State Policymakers
Texas Department of Human Services - 2001 Vendor Fiscal Intermediary (VFI) Option Consumer Training
Minnesota Governor’s Council on Developmental Disabilities - 2002 Consumer Directed Community Supports Survey
CASA Association of New York State - 2002 New Worlds, New Users, Old Systems:
University of Maryland, National Program Office; Mahoney, Kevin J.; Simon-Rusinowitz, Lori - 2002 The Cash and Counseling Demonstration - Program
Frogue, James - 2003 The Future of Medicaid: Consumer-Directed Care
Litcher, Edward - 2003 CDPAP Fundamentals
Niesz, Helga - 2003 COLORADO'S CONSUMER DIRECTED ATTENDANT SUPPORT PROGRAM
Foster, Leslie; Brown, Randall; Phillips, Barbara; Schore, Jennifer; Lepidus Carlson, Barbara - Mathematica Policy Research, Inc. - 2003 Does Consumer Direction Affect the Quality of Medicaid Personal Assistance in Arkansas? Final Report
Mahoney, Kevin - 2003 Consumer Directed Services: Improving Medicaid Beneficiaries' Access to Quality Care
Heumann, Judith E. - 2003 Consumer-Directed Personal Care Services for Older People in the U.S.
Virginia Department of Medical Assistance - 2003 Consumer Directed Personal Attendant Services Manual
Rural Assistance Center - 2003 Study Finds Model Consumer-Directed Care Program Costs Medicaid No More than Traditional Agency Care
Gibson, Mary Jo - 2003 In-Brief: Consumer-Directed Home Care in the Netherlands, England, and Germany
Owcharenko, Nina - 2003 A New Direction for Medicaid
ADAPT - 2003 Components of agency-delivered, consumer-directed services
Kafka, Bob - ADAPT - 2003 'Agency with Choice' model
Flanagan, Susan A - 2003 Accessing Workers’ Compensation Insurance for Consumer-Employed Personal Assistance Workers: Issues, Challenges and Promising Practices
Bogart, Valerie J - 2003 Consumer Directed Assistance Program Offers Greater Autonomy to Recipients of Home Care
Holland, Ira E. - 2004 In Memoriam: Ira Holland (1939-2004)
Sabatino, Charles P.; Hughes, Sandra L.; Commission on Law and Aging; American Bar Association - 2004 Addressing Liability Issues in Consumer-Directed Personal Assistance Secretary: The National Cash and Counseling Demonstration and Selected Other Models
National Council on Disability Members and Staff - 2004 Consumer-Directed Health Care: How Well Does It Work?
U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services - 2004 Recruiting and Retaining a Quality Paraprofessional Long-Term Care Workforce: Building Collaboratives with the Nation's Workforce Investment System
TEXAS HEALTH AND HUMAN SERVICES COMMISSION - 2004 EFFECTIVENESS OF CONSUMER DIRECTED SERVICES: FIRST ANNUAL UPDATE
Kaiser Family Foundation - 2005 Keeping Medicare and Medicaid When You Work, 2005: A Resource Guide for People with Disabilities, Their Families, and Their Advocates
Kaiser Family Foundation - 2005 Navigating Medicare and Medicaid, 2005: A Resource Guide for People with Disabilities, Their Families, and Their Advocates
US Surgeon General - 2005 The Surgeon General’s Call to Action to Improve the Health and Wellness of Persons with Disabilities
Dale, Stacy; Brown, Randall; Phillips, Barbara; Lepidus Carlson, Barbara - 2005 How Do Hired Workers Fare Under Consumer-Directed Personal Care?
Kim, Kyung Mee; Fox, Michael H.; White, Glen W. - 2006 Comparing outcomes of persons choosing consumer-directed or agency-directed personal assistance services
Simon-Rusinowitz, Lori and Loughlin, Dawn M. - University of Maryland Center on Aging; Mahoney, Kevin J. - Boston College Graduate School of Social Work - 2006 Do Consumers get Good Quality Care in a Consumer-Directed Program? Experience from the Cash & Counseling Demonstration and Evaluation.
UCSF National Center for Personal Assistance Services - 2008 Home and Community-Based Services: Introduction to Olmstead Lawsuits and Olmstead Plans
Goldfarb Abrandt Salzman & Kutzin LLP - 2008 SUPPLEMENTAL NEEDS TRUSTS FOR DISABLED PERSONS
Dulio, Adrianne and Perry, Michael - Lake Research Partners; Claypool, Henry - Paraprofessional Healthcare Institute; O�Malley, Molly - Kaiser Commission on Medicaid and the Uninsured - 2008 CONSUMER DIRECTION OF PERSONAL ASSISTANCE SERVICES PROGRAMS IN MEDICAID Insights from Enrollees in Four States
Claypool, Henry - Paraprofessional Healthcare Institute; O�Malley, Molly - Kaiser Commission on Medicaid and the Uninsured - 2008 Consumer Direction of Personal Assistance Services in Medicaid: A Review of Four State Programs
Bogart, Valerie - Selfhelp Community Services & Brigillo, Robert - Nassau Suffolk Law Services - 2008 Federal Settlement Expands Access to Medicaid Consumer-Directed Personal Assistance and Nursing Services

PROGRAM MANAGEMENT & BENEFIT INFORMATION
CCH Financial Planning Toolkit
Child Health Plus – New York State’s health insurance plan for kids
Family Health Plus is a bold, new innovative program that will provide nearly 720,000 uninsured adult New Yorkers access to comprehensive health care coverage
Free resources for Payroll do-it-yourselfers, plus an online service for residents of some states
HealthCare Wide Hazards Module
Healthy NY Eligibility Criteria for Individuals
National Academy of Elder Law Attorneys, Inc. - Locate an Elder Law Attorney
New York City Office of Emergency Management
New York State Emergency Management Office
New York State Health Care Proxy Program
Northeast-Southeast Dental Plan
Paycheck Calculator
New York City Home Care Program - Non-Profit Agency - Overtime Exemption
New York State Department of Labor - Statement of Non-Profitmaking Institution


To recommend a site, an article or to submit your comment or recommendation please send an email to elitcher@consumerdirectedservices.com

THANK YOU
FOR YOUR INTEREST IN
CONSUMER DIRECTED SERVICES

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CONSUMER DIRECTED SERVICES
Edward Litcher
540 Main Street, Suite B1314, Roosevelt Island, NY 10044
Phone: 718.233.3312
Fax: 718.233.3312

Email: elitcher@consumerdirectedservices.com